Brain Activity & Thoughts: Should Neuro-Rights Look Beyond the Individual?
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Brain Activity & Thoughts: Should Neuro-Rights Look Beyond the Individual?

Neuro-rights may protect people from certain harms due to neurotech advances. Neurotech has potential to improve medical treatments and revolutionize care, but there are foreseeable risks. Marcello Ienca defines neuro-rights “as the ethical, legal, social, or natural principles of freedom or entitlement related to a person’s cerebral and mental domain; that is, the fundamental normative…

Fair Compensation for Data: Privacy, Blockchain, Ethics, and Data Science Converge

Fair Compensation for Data: Privacy, Blockchain, Ethics, and Data Science Converge

When we look at privacy, many goals converge. I separate constitutional privacy and protection from government surveillance from personal confidentiality. Having explored whether one can survive without the other, I remain uncertain. But I am certain that a balance of values would lead to more fairness and that confidentiality is not the only important ethical…

From OR to EMR: Informed Consent’s Rocky Transition to Data

From OR to EMR: Informed Consent’s Rocky Transition to Data

Hackable Part 4 A hyper-focus on informed consent as the primary tool to ensure autonomy represents some lapses in the field of bioethics. To me, informed consent is more valuable in traditional clinical care or medical research than in engagement with big data. Yet consent is the operational tool behind widespread data collection and the…

Facial Recognition Technology in Medicine: A Use-Based Ethical Framework

Facial Recognition Technology in Medicine: A Use-Based Ethical Framework

Facial recognition technology is everywhere. Pew Research found more than half of adults trust law enforcement with facial recognition but fewer trust tech companies, advertisers, and landlords. The data signifies not only that the user matters, but that use matters. Tracking facial reactions to public ads and displays was the least popular use cited by…

Big Data: Reconciling Privacy, Antitrust, and Data-Generating Patents
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Big Data: Reconciling Privacy, Antitrust, and Data-Generating Patents

Data-Generating Patents require a broad ethical approach that incorporates business ethics. Ethics should that adhere to the spirit behind antitrust law and competition to protect consumers. Intellectual property rights are expanding. Data-generating patents can preclude competitors from obtaining, collecting, or generating the same type of data. It also deprives people of control over their data…