Big Data as Collective Judgments

Big Data as Collective Judgments

People put a lot of stock in data. Data is essentially information. It often becomes the basis for an assumption. When we think of data, we think of facts. That works in many settings. For example, an ingredient label, done truthfully, lists ingredients. If it lists flour, one would reasonably assume the product contains flour….

Can AI Commit a Crime? A Look at Intent

Can AI Commit a Crime? A Look at Intent

In criminal law, the mens rea is the criminal intent. It is a mindset – most crimes require both an act and a mindset. Often mens rea is what distinguishes guilt from innocence even among people who have committed the same act. For example, pushing a shopping cart of bagged groceries out of a store…

Blockchain and Health: Will Healthcare NFTs be the Next Bored Ape?

Blockchain and Health: Will Healthcare NFTs be the Next Bored Ape?

I don’t think so, but I do wonder whether the coins or tokens that yield healthcare access or access to items and services conducive to health can develop robust trading markets, increasing their value, and become a universal tool for accessing health care and improving health. As with an NFT, token, or coin, demand drives…

Brain Activity & Thoughts: Should Neuro-Rights Look Beyond the Individual?
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Brain Activity & Thoughts: Should Neuro-Rights Look Beyond the Individual?

Neuro-rights may protect people from certain harms due to neurotech advances. Neurotech has potential to improve medical treatments and revolutionize care, but there are foreseeable risks. Marcello Ienca defines neuro-rights “as the ethical, legal, social, or natural principles of freedom or entitlement related to a person’s cerebral and mental domain; that is, the fundamental normative…

Fair Compensation for Data: Privacy, Blockchain, Ethics, and Data Science Converge

Fair Compensation for Data: Privacy, Blockchain, Ethics, and Data Science Converge

When we look at privacy, many goals converge. I separate constitutional privacy and protection from government surveillance from personal confidentiality. Having explored whether one can survive without the other, I remain uncertain. But I am certain that a balance of values would lead to more fairness and that confidentiality is not the only important ethical…

From OR to EMR: Informed Consent’s Rocky Transition to Data

From OR to EMR: Informed Consent’s Rocky Transition to Data

Hackable Part 4 A hyper-focus on informed consent as the primary tool to ensure autonomy represents some lapses in the field of bioethics. To me, informed consent is more valuable in traditional clinical care or medical research than in engagement with big data. Yet consent is the operational tool behind widespread data collection and the…

Hackable:  Children’s Digital Literacy and Voluntary Disclosure
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Hackable: Children’s Digital Literacy and Voluntary Disclosure

(Part 3 of series) Children and young adults spend significant time online using apps that collect massive amounts of information, but they may lack digital literacy. Schools also collect much more information than they used to. The voluntarily divulged information in an online profile plus any hackable identifiable data make children vulnerable to future and…

Voluntariness— Empowering Informed Consent in Medicine, Technology, and Data Privacy
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Voluntariness— Empowering Informed Consent in Medicine, Technology, and Data Privacy

Voluntariness at the time one provides data is an important, overlooked part of providing informed consent. In medicine, informed consent requires voluntariness, yet the on-the-ground experience may reveal pressures to comply. The new landscape of responsible technology, while it incorporates certain types of consent like clicking to accept cookies, needs more definition and clarity around…

Hackable: Schools and Children’s Private Medical Records
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Hackable: Schools and Children’s Private Medical Records

Part 2 in a series on privacy The ethics literature on cybersecurity rarely focuses specifically on children’s data stored by or for schools. Critical analysis should inform an ethics debate over the collection, storage, and use of children’s medical records at the foundational level. Hackers have breached vulnerable websites of labs, insurers, and hospitals. While…

Hackable: The New Privacy Ethics
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Hackable: The New Privacy Ethics

(a six-post series) Privacy & Disclosure of Personal Data As people spend more time online and using apps that collect massive amounts of information, government entities grapple with how to define and protect privacy through regulation. To deem privacy waived by a click that allows access, e.g., by acknowledging cookies, seems unprincipled. But there is…