From OR to EMR: Informed Consent’s Rocky Transition to Data

From OR to EMR: Informed Consent’s Rocky Transition to Data

ByAnne Zimmerman

Hackable Part 4 A hyper-focus on informed consent as the primary tool to ensure autonomy represents some lapses in the field of bioethics. To me, informed consent is more valuable in traditional clinical care or medical research than in engagement with big data. Yet consent is the operational tool behind widespread data collection and the…

Voluntariness— Empowering Informed Consent in Medicine, Technology, and Data Privacy
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Voluntariness— Empowering Informed Consent in Medicine, Technology, and Data Privacy

ByAnne Zimmerman

Voluntariness at the time one provides data is an important, overlooked part of providing informed consent. In medicine, informed consent requires voluntariness, yet the on-the-ground experience may reveal pressures to comply. The new landscape of responsible technology, while it incorporates certain types of consent like clicking to accept cookies, needs more definition and clarity around…